New York parents fight insurance denial for baby's life-saving brain surgery

Hamburg, New York (WivbThere is a couple from West New York next to themselves after the insurance company denied insurance surgery for their 10-month-old child. Now, they are begging for help and they suffer from hope that the decision will be reversed.

Cameron Casashi was born in September 2024, and he is always the child Alyssa and Brad Casachay. But within hours of the birth of Cam, their world turned upside down.

“They did MRI on this one -day -old child and assured the worst: He had a very large stroke on the left side of his brain. [Additional] Alyssa said: “The activity of Nubia was secondary for this injury,” Alyssa said.

Then the family was transferred to the Ocelli Children’s Hospital in Boufalo, where they spent the next 19 days to adhere to the hope of a miracle to save their infant child.

“It is really difficult to swallow birth control pills when you realize that you have a sick child in Nicu,” Alyssa said. “Cam is the most flexible, harder and difficult child you will meet at all. We spent only 19 days there. We thought we would be there for a longer period.”

Kam continued to fight, as the family did, they could not deal with his condition. Through all the needles and medicines, they continued to hope to find a solution to save their son.

“[The Oishei neurosurgeon] Alyssa said: “He recommended a very radical surgery,” Alyssa said. Half the hemisphereThey enter mainly and separate the left hemisphere from its brain from the right [in order to stop the seizures]”

The family sought treatment with the recommended nerve surgeon in Pittsburg, and a date for surgery has been set. When they prepared for the procedure, their hopes and prayers stopped somewhat.

The insurance company denied independent health through New York Midikid state because it was outside the network.

“They were saying, we have people here who are surgery,” Alyssa said. “[However]From the start, we were told that there is no one in West New York and has the skill and experience to carry out this specific surgery. “

Now, after more than a month since CAM was appointed to perform surgery, the sad family hopes that the insurance company will set its decision.

“Do the right thing,” said Brad Casashi. “Look at it as a human being, as a child, and not as a dollar sign.”

NexStar’s Wivb communicate to independent health. While the company said it is prohibited by the law from discussing the details of the health information of the member, it presented the following statement, in part:

“As a managed care plan from Medicaid, we are committed under federal compliance and state laws to follow coverage decisions. Medicaid plans in New York State do not include coverage outside the region, unless it is possible to provide service in the network. When such denial occurs, independent health has determined an provider (s) and/or (S) facilities with the ability to provide this specific service.”

Independent health

The company added that it is “always clearly” its members informing that they have appeal rights and they can request a fair hearing if they do not agree to the coverage decision. Independent health also said after the start of the appeal, decisions will be made by external entities and that these decisions are “binding.”

While Kam’s parents are still destroyed by the denial of coverage, they say they will not abandon the fight for their son. A Gofundment For the Casacci family created by the best friend of Alyssa, Taryn Nichols. The fund so far raised just over $ 39,000 from its goal of $ 100,000.

On her GOFUNDME page, Nichols explains that due to the complications of CAM, ALYSSA CASACCI was forced to leave her job as a child professional treatment. The family is now working under one income because they hope to get a break soon.

Brian WIVB told that the “very difficult” situation often feels dark and isolated. He said that in some days it seems that he does not know how he will go to the next day, but there is one reason that he will continue to do so.

“… we are doing it for the sake.”

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